Survey support materials
On this page, you will find documents and materials relating to conducting the survey. This includes the questionnaire, the materials needed by NHS providers to compile their sample of patients, and information governance approvals.
Publicity materials:
Publicity Toolkit Guidance Document (New)
About the survey - Easy Read version
Bluesky / X (formerly Twitter) Images
Leaflets for children/young people
Design and development:
Fieldwork preparation:
Survey Handbook:
Sampling documents:
2025 U16 CPES Sampling Instructions
2025 U16 CPES Sampling Patient List Spreadsheet
2025 U16 CPES Declaration Form
2025 U16 CPES Data Sharing Agreement
Comms Toolkit webinar:
U16 CPES Comms Toolkit Webinar Slides
Surveys:
The Under 16 Cancer Patient Experience Survey 2025 will commence soon. If you would like to provide feedback, please visit the Help & Support page of this website for other ways of providing feedback. Please do not download and complete the copies found on this page.
Copies of the 2025 surveys can be found below.
If you are interested in using the survey to understand child and parent experiences of cancer care, please contact under16cancersurvey@PickerEurope.ac.uk
If you would like accessible versions of the surveys, please contact under16cancersurvey@PickerEurope.ac.uk